Resources
Below, you’ll find some helpful resources about normal pressure hydrocephalus and dementia.
Charities and associations
Government health information
NHS England: Dementia as a priority
UK government dementia profile: data relating to people with dementia, such as prevalence and diagnostics, risk factors, use of hospital services and mortality.
Hydrocephalus and dementia in the news
BBC News article:Â New one-stop clinic reverses condition mistaken for Alzheimer’s disease
ITV News article: ‘The gift of a new life’: Lowestoft gran with dementia symptoms cured by Addenbrooke’s clinic
U.S. News article: Is It Really Dementia? Maybe Not.
BBC News article: ‘There was no hope’: Treatable disease often mistaken for Alzheimer’s.
Nursing Times article: Dementia diagnoses reach ‘record high’ in England
Clinical guidelines
‘The National Institute for Health and Clinical Excellence (NICE) has issued full guidance to the NHS in England, Wales, Scotland and Northern Ireland on the lumbar infusion test for the investigation of normal pressure hydrocephalus.’
Academic publications
Hebb A, Cusimano M. Idiopathic Normal Pressure Hydrocephalus: A Systematic Review of Diagnosis and Outcome. (2001) Neurosurgery 49:1166–1186
Savolinen S, et al (1999) Prevalence of Alzheimer’s Disease in Patients Investigated for Presumed Normal Pressure Hydrocephalus: A Clinical and Neuropathological Study. Acta Neurochirurgica 141:849–853
Czosnyka, Z. at al. (2005). Clinical testing of CSF circulation in hydrocephalus. Acta Neurochirurgica, Supplementum, c(95), 247–251.
Baroncini, M. et al (2018). Ventriculomegaly in the Elderly: Who Needs a Shunt? A MRI Study on 90 Patients. Acta Neurochir Suppl., 126, 221–228
Lokossou A, et al. (2018) ICP Monitoring and Phase-Contrast MRI to Investigate Intracranial Compliance. Acta Neurochir Suppl.;126:247–253
Lalou A et al (2020). Shunt infusion studies: impact on patient outcome, including health economics. Acta Neurochir (Wien). 162(5):1019-1031
Fernández-Méndez R at al (2020). Improvement of the Efficiency and Completeness of Neuro-Oncology Patient Referrals to a Tertiary Center Through the Implementation of an Electronic Referral System: Retrospective Cohort Study. J Med Internet Res. 22(3): e1500219.
Wimo A et al. (2011) The Economic Impact of Dementia in Europe in 2008-cost Estimates From the Eurocode Project. Int J Geriatr Psychiatry; 26: 825–832.
Software
All the software produced by the project are available on the github repository upon request. Please contact: [email protected]